Becky and Tim Molter invite you to an evening of fun to raise money for the continued research of Hermansky-Pudlak Syndrome.
5th Annual Mouse PROJECT Fundraiser Saturday , April 25, 2009 7 p.m. - 11 p.m. Sweetwater Sound This year’s special evening of fun with friends is being held to help ensure Julia and Tommy, and other children and adults with HPS, can follow their dreams. Tickets are just $60 per person and your reservation will include gambling with Little Vegas casino, a silent auction, open bar, hors d’oervres and drinks.
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Hermansky-Pudlak Syndrome or HPS is an extremely rare and complicated
condition affecting only 600 people in the United States and Puerto Rico. It is
a genetic metabolic disorder characterized by Albinism, vision impairment and
bleeding diathesis. In 2005, The Mouse Project was launched. This name was
chosen as scientist use mice in their laboratories to identify and isolate
potential cures. The American Thoracic Society has matched the total raised
research funding to support the Molter’s quest to find a cure for their
children.
When Becky and Tim Molter discovered that their children have a genetic
dsorder called Hermansky-Pudlak syndrome (HPS) they became proactive and worked
to raise money locally to financially fund research projects. “Our main goal is
to lead scientists to find a cure for the fatal complication of HPS, pulmonary
fibrosis.”
Thanks to the funding provided by the people of Fort Wayne, Ind. The HPS
Network has been able to fund our part of the second year of a grant to Dr. Lisa
Young. Dr. Young is studying the lungs of HPS mice and humans to better
understand the biochemistry and cellular biology involved and thus identify
future treatments. Her findings regarding T2 cells, macrophages and surfactant
levels in those with HPS have been most helpful to all researchers working on
HPS. Dr. Young’s grant is a joint effort of the HPS Network and the American
Thoracic Society.
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